the objects of the cio are to relieve the needs of young people up to the age of 24 with neurofibromatosis (nf1) and their families in particular but not exclusively by:
– funding and organising social events and activities for their benefit/that relieve their needs and by providing opportunities to meet up with others with nf1;
– raising money for, help fund and organise holiday camps for young people with nf1;
– signposting and linking people to the best information/resources available for nf1;
– raising awareness of nf1 through campaigning, working alongside other organisations, the nhs and researchers to improve both diagnosis and better care of for people with nf1;
– funding peer-reviewed research into nf1 where the useful results of which are made available for the public benefit.
