Young Epilepsy

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What we do

Children and young people with epilepsy have a right to be heard. We stand with them.

Childhood epilepsy can be frightening, isolating and often a misunderstood condition.   We work with children and young people with epilepsy, to ensure their voices are heard and their rights protected.

We campaign for children’s rights. We deliver health services and research that improve diagnosis and treatments. We support children and young people throughout school, college, and university. We provide information, friendly advice, and practical help for living everyday life. 

Our vision is to create a society where children and young people with epilepsy are enabled to thrive and fulfil their potential.  A society in which their voices are respected and their ambitions realised. 

Some facts about epilepsy

  • About 1 in every 200 children and young people in the UK has epilepsy. 

  • 1 in 3 children with epilepsy do not get the support they need at school.

  • 77% of young people with epilepsy feel it affects their mental well-being. 

  • Every year in the UK around 1,000 people die from causes related to epilepsy.

With your help we can improve the lives of young people with epilepsy. 

How you can support Young Epilepsy:

Together we create possible

Epilepsy can be one of the most frightening and isolating conditions a child can experience. There are so many ways you can make a difference.

You can:

  • Become a member of the Youth Voice Network: The Youth Voice Network is a group of over 100 young people with epilepsy who help to ensure that young people are at the centre of everything we do at Young Epilepsy. 

  • Fundraise: You could get your school or community involved with Purple Day on 26th March 2024, or take on a challenge of your own! FUNdraising doesn't have to be hard or take up a lot of time, but the clue’s in the name, it has to be FUN! 
  • Raise awareness: Celebrate National Epilepsy Week from 26th May to 2nd June 2024.  Spread the word about epilepsy, what it means to have epilepsy, and how communities can be more inclusive of people with epilepsy. 

Join #TeamPossible and show children and young people with epilepsy that you’re on their team.  Are you in?

Young Epilepsy is most active in these areas:

Good Health and Well-Being
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